Our Community

See what our advocates have been doing!

The Long Fight is a Good Fight!

You will hear MaryAnne’s personal story as a caregiver and healthcare advocate for over 20 years, with three of her four parents and parents-in-law diagnosed with dementia. We also chat about: balancing work and caregiving; government initiatives related to caregiving (RAISE Act and family leave legislation); importance of caregivers having a voice in government legislation, health policy, health research, even health care delivery; her long, arduous fight for increased Alzheimer’s research funding; the healing energy of the great outdoors

Changing The Conversation About Dementia

Southern Gerontological Society 40th Annual Meeting Feature Session: Changing The Conversation About Dementia, Including Alzheimer’s Disease

CMS Quality Conference 2018

Patient Panel: Empowering patients to take ownership of their healthcare

AFTD -- Voices of FTD

People living with frontotemporal degeneration (FTD) play a crucial role in our community, making their voices heard and contributing their talents and perspective to the fight against this disease. This video, created by Gary Radin, originally aired at AFTD's World Awareness Week kick-off event, held at One World Trade Center on October 1, 2015.

Talking FTD

A couple dealing with frontotemporal degeneration (FTD) talk about their experience and educate others on FTD.

National Academy of Medicine Workshop

Models of Care for High-Need Patients