Medical Research
Help transform medical research to be more accessible, easier to understand, and driven by patient/caregiver leaders.
Opportunities
Advisory Council on Alzheimer's Research, Care, and Services
The Advisory Council on Alzheimer's Research, Care, and Services meets quarterly to discuss programs that impact people with Alzheimer's disease and related dementias (AD/ADRD) and their caregivers. Representatives from agency and organizations that work with dementia treatment and care are invited to present information to the Advisory Council. The public is also given time at each meeting to provide first-hand information of their day-to-day experience.
Visit website →- National
Alzheimer’s Association
Non-profit organization that leads dementia policy initiatives through an Ambassador program comprised of patients and family caregivers.
Visit website →- National
Christopher and Dana Reeve Foundation
We are dedicated to curing spinal cord injury by advancing innovative research and improving quality of life for individuals and families impacted by paralysis.
Visit website →- National
Genetic Alliance
Since its founding, Genetic Alliance has been the voice of advocacy in genetics. We empower others to make their voices heard. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities.
Visit website →- National
The Lewy Body Dementia Association (LBDA)
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.
Visit website →- National
The Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.
Visit website →- National
National Academy of Medicine
To improve health for all by advancing science, accelerating health equity, and providing independent, authoritative, and trusted advice nationally and globally.
Visit website →- National
Patient Centered Outcomes Research Institute (PCORI)
PCORI helps people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community. Learn more about PCORI and influence the future of research.
Visit website →- National
UsAgainstAlzheimer’s A-List
Online community using their collective voice to overcome scientific skepticism around the value of patient and caregiver engagement in research. Join today!
Visit website →- National